Started IGF Therapy

Had an early morning. Up for catscans, Appt with Dr and then they started Ryan on the antibody. He has tolerated it very well. It took about 2 hours to infuse. We recieved a preliminary report back from his catscans. His mass on the adrenal bed has increased in size. His spots on his liver have grown some as well. They did not give us measurements yet. We will know more when we get the final report faxed to us.With this, the clinical trial is still the best method of treatment. We are still hopeful that this will work. The best news today was that his mitotic level, which tells you how fast the tumor is growing. Ryans is a low mitotic rate which means that it hsa a slower growth rate. THis was good news-the Dr said during his experiance, these types of tumors have responded well to additional therapies.

We are missing you all back home so much. Cant wait to get back!! We are so fortunate to have our family here to keep us company. The boys have loved spending time with their cousins "Nolah and Jake" (Kolby calls Noah, Nolah - too funny). My aunt and uncle have set up our own little place downstairs, where the boys even have their own beds. Thank you again so much Nick and Trish. We will be heading back that way tomorrow to transfer Ryans care to University of Chicago where he will recieve his antibody injections from now on.

All our Love, Hope you all have a very happy New Year.
Ryan, Ashley, Brody and Kolby